Tuesday 22 July 2014

Two and a half weeks post op

Well.... Evie was doing really well after the first couple of bad days after operation - her first sentence after the op was "can I have a wheelchair yet?"! She had been so looking forward to having a try in a wheelchair! Which she mastered reversing and turning within about 5 minutes!

She had a couple of bad days after the op with a high temperature and headaches but these subsided and by day 6 was discharged.. She was happy to be home as we had 2 new springer spaniel puppies awaiting but after a few days of doing really well has slipped back.

She has been suffering with headaches and nausea especially - the neurosurgeon did advise that this was something to expect for up to 6 weeks!! It's really tough on Evie and she has become someone who is usually a lovely and happy to little girl who is lashing out and gets very irritated. We are learning that as the calpol wears off she gets these moods. It's so hard for her as she gets down and it's hard on the family too as they struggle to cope with the mood swings. I just hope she starts to improve for her sake, it must be horrible to feel like that. She has slept through the last couple of nights which has been fantastic, I had hoped it may make her feel a bit better but it doesn't seem to make much difference.

We do have some good moments too and have been busy making collages and having picnics in the garden which I am so grateful for! She is also having a friend round for a little while later in the week as we thought it would be nice and it's easier for me to keep an eye on her when we are at home - when we have been out she just wants to do what any other 6 year old wants to do but she can't yet.
We are hoping that she can go back to Ballet in September - also she loves her gymnastics which she has done since she was 3 and we hope she can go back to that maybe in September or October. We will just have to see how she does.

We are awaiting her post op appointment and the date for her MRI to check that all is looking ok. Should be in around 4 - 6 weeks time... we are off on holiday for a week so are hoping these don't clash! Also hoping she is able to cope with going away - I'm sure it will do her the world of good.

Well enjoy the sunshine all and will keep you posted.

The photo below is of Evie a month before her operation.

C x

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